Call for Disabled Role Models in Asian Region for Brochure

Posted on 29 May 2009. Filed under: Announcements, Call for Audio & Visual Materials, Call for Comments or Information, Call for Nominations or Applications, East Asia Pacific Region, Human Rights | Tags: , , , , , , , , , , , , , , , , , , , |

by Aiko Akiyama

Please note that the deadline to submit pictures and bios is May 31, 2009.

Dear colleagues,

United Nations Economic and Social Commission for Asia and the
Pacific (ESCAP) is putting together a brochure entitled, “Agents of
Change,” to promote the social model of disability and explain the changes that will need to be made to meet the requirements of Convention on the Rights of Persons with Disabilities and the Biwako Millennium Framework for Action, which is the regional policy guideline on disability. As a part of the brochure, we would like to have pictures and messages of mentors with disabilities from the region as they themselves are agents of change.

We would like to ask for your collaboration in this endeavor. We would likes to have active thematic photos of persons with different impairments in the region, who work in certain professions as well as a
caption or a statement about how you see “disability” and a message to
younger generations of persons with impairments in the region.

Thus far, we have a picture and a message of a deaf pharmacist from
Japan, are also waiting for a picture of a blind architect from the
Philippines and another picture from Kyrgyzstan. We are also planning on
shooting a picture of a pizza baker, inT hailand, who is physically
disabled. We would like to have pictures of a person with intellectual
disability, a picture of a person who is a survivor of psychiatry, a
picture of deaf blind person all of whom are working in certain professions which they are proud of. Moreover, we would like to particularly welcome pictures from South Asia and the Pacific.

Time is of the essence and we would appreciate your urgent attention
to this request. We would appreciate if you can e-mail us pictures (sharper images are appreciated) towards the end of this month 31 May 2009. The
brochure is in draft form at the moment and you contributions would help us finalize it. Before the brochure final draft goes out to the printer, a copy will be circulated for those who are interested for peer review. Let me know if you are interested in that process.

Please send us pictures and messages to Mr Osama Rajkhan (rajkhan.unescap@un.org) and Aiko Akiyama (akiyama@un.org).

I look forward to hear from you soon and best regards.

Aiko Akiyama
Social Affairs Officer
Social Development Division (SDD)
UNESCAP
THAILAND
Email: akiyama@un.org
http://www.unescap.org/esid/psis/disability/index.asp



I received this announcement from Aiko Akiyama via the AsiaPacificDisability listserver. Please note that all inquiries, pictures, and bios should please be directed to Mr Osama Rajkhan (rajkhan.unescap@un.org) and Aiko Akiyama (akiyama@un.org), NOT to We Can Do. Thank you.

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REPORT: Disability in 28 Asian-Pacific Countries

Posted on 28 January 2009. Filed under: Academic Papers and Research, Cross-Disability, East Asia Pacific Region, Policy & Legislation, Reports, South Asian Region | Tags: , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , |

The Asian and Pacific Decade of Disabled Persons (2003-2012) was meant to promote a rights-based approach toward disability in the Asian-Pacific Region, in place of the older welfare-based approach. The “Biwako Millennium Framework for Action towards an Inclusive, Barrier-free and Rights-based Society for Persons with Disabilities in Asia and the Pacific (BMF)” was meant to provide countries in the Asian region with a set of principles to help them make the shift. How well has it succeeded?

In 2004, the Economic and Social Commission for Asia and the Pacific (ESCAP), a part of the United Nations system, conducted a survey to find out. The result is an 87-page publication entitled “Disability At a Glance: Profile of 28 Countries in Asia and the Pacific” (PDF format, 780 Kb), released in 2006. It is meant to provide disability-related data and policy information so that readers can compare definitions of disability; statistics; the implementation of the Biwako framework; and government commitments to disability issues across the Asian-Pacific region. The countries and regions covered in the publication include: China; Hong Kong; Japan; Mongolia; Republic of Korea; Cambodia; Indonesia; Lao People’s Democratic Republic; Malaysia; Philippines; Singapore; Thailand; Timor Leste; Vietnam; Afghanistan; Bangaldesh; Bhutan; India; Maldives; Nepal; Pakistan; Kazakhstan; Pacific Australia; Cook Islands; Fiji; Kiribati; and Solomon Islands.

Each country is represented with a one- or two-page table filled in with relevant statistics and one-paragraph summaries of disability-related legislation and policies in the country. This publication is not the place to seek out in-depth information about the complexities and nuances of daily life for people with disabilities in the Asian-Pacific region. But then, it is not meant to be. It’s strength is that it allows quick and easy comparison of certain specific types of information across many countries within the region. Or, people who wish to gain a broad sense of disability demographics, policies, and inclusion in the Asian-Pacific region as a whole will wish to read the section sub-headed “Key Findings,” starting near the bottom of page 9.

Download the full report (PDF format, 780 Kb) at http://www.unescap.org/esid/psis/disability/publications/glance/disability%20at%20a%20glance.pdf.

People interested in reading reports about disability in the Asian-Pacific region will also want to browse the Social Policy Papers on disability listed on the ESCAP web page at http://www.unescap.org/esid/psis/publications/index.asp. Two examples of additional reports and publications include Focus on Ability, Celebrate Diversity: Highlights of the Asian and Pacific Decade published in 2003, following the 1993 to 2002 decade; and Hidden Sisters: Women and Girls with Disabilities in the Asian-Pacific Region, 1995.

People also may wish to read the original Biwako framework on-line, or read the 2007 “Biwako Plus Five” update on progress since the Biwako framework was written.



I learned about this publication through the AsiaPacificDisability listserver, which people can subscribe to for free.

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News from Kyrgyzstan: Projects, Laws, Funding Opportunities

Posted on 27 August 2008. Filed under: Children, Cross-Disability, Eastern Europe and Central Asia, Families, Funding, Human Rights, News, Policy & Legislation, Uncategorized, youth | Tags: , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , |

The following newsletter was sent to We Can Do from Kyrgyzstan–thanks to Azat Israilov for passing this on. This contains news about projects for people with disabilities in Kyrgyzstan; a new law protecting the rights of people with disabilities; the Convention on the Rights of Persons with Disabilities; and announcements for a couple of funding opportunities. Content of Newsletter; Bottom of this page

We are for equal possibilities and better future!
INFORMATIONAL BULLETIN

The newsletter is published under the Health Prom project “Supporting young disabled children and their families in KR” funded by the Big Lottery Fund

July 2008
Content:
Letter from A.Israilov, national in-country project manager
Project “Supporting young disabled children and their families” funded by the Big Lottery Fund started in Kyrgyzstan
Brief information about participants of the project
HealthProm visit to Kyrgyzstan to start the project
Young people: new horizons!
President signed the Decree “About the rights and guarantees for persons with disabilities”
UN adopted the Convention on the rights of persons with disabilities
The new law about social order accepted
Japanese agency for international cooperation plans to open a centre for
people with disabilities

Projects on employment for disabled people
The Japanese fund of reduction of poverty is intended to support disabled children
Children on holiday in Issyk Kul
Grants

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Dear readers, colleagues and partners,

We welcome you on the pages of the first issue of the Informational bulletin which is published under the HealthProm project “Supporting young disabled children and their families in KR”, financed by the Big Lottery Fund. The important aims of the bulletin will be providing news that are related to children with special needs and their families, and also updating on the progress of the project. The bulletin will be published and distributed once a quarter. At the same time neither the project, nor the bulletin will be involved in political processes in the country. In the first issue you will find some information on the project, its participants and also learn about
some latest events in social sphere of Kyrgyzstan.

It is hoped that the bulletin as a specialist publication will continue its existence beyond the project, and will become a useful source of information for parents and concerned organizations and people. And to become so we will be delighted to publish your interesting news and helpful information which you would like to share with.
Sincerely,
A.Israilov, national in-country project manager

“Supporting young disabled children and their families in KR”
Contacts: Bishkek, m/r Kok-Zhar, h. 1, p/p 4, Tel./fax (0312) 517634, aisrail@gmail.com

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Project “Supporting young disabled children and their families” funded by the Big Lottery Fund started in Kyrgyzstan
Charitable organisation HealthProm, located in London, UK, together with the Association of Parents of Disabled Children (ARDI) and Public Association “Shoola Kol” has started a project “Supporting young disabled children and their families in the Kyrgyz Republic” funded by the Big Lottery Fund. The project is for three years and will help to establish two rehabilitation and resource centres in two pilot localities – Bishkek and Issyk-Kul oblast with Bokonbaevo v. as a centre. The project aims to improve on improving health and well-being of young children with disabilities and their parents through rehabilitation services, informational support and consultations. The project will not be involved in politics.

Prior to the project beginning there were study visits and research done during which the distress of people with disabilities, especially children, was revealed, whose families belong to the group with the lowest incomes in the country. According to the Ministry of Labour and Social Development, there are about 117 thousand people with disabilities in the republic now, out of them more than nineteen thousand are younger than 18, and 66% out of general number live in rural areas. The number of the disabled makes up 2,1% of the whole population while in the developed countries this figure varies approximately from 10 up to 20% (for example, in
the UK it is about 15%, in Russia up to 10%).

The project will fill the gap in knowledge and information resources in the Republic about prevention of disability, alternative approaches to child disability. Various trainings based on current needs will improve knowledge and skills of people with disabilities as well as of medical and social professionals. There will be developed or translated and published a number of necessary materials, and a specialised web site on disability issues will be created. A specialised microbus for each centre will connect experts and volunteers with disabled children and their families in the remote areas.

“The project focuses on sustainable development of our partners and the centres, and also on cooperation with local communities, non-governmental organisations and relevant local government agencies.” – underlines Tatyana Buynovskaja, the project manager. – “It includes programs on early intervention and providing advisory and practical support to new families with disabled children.” Tamara Dyikanbaeva, ARDI chairwoman, adds: “The project was developed taking into account the needs and wishes of parents and disabled children, considering provision of complex and versatile support to children and their parents. The project activity is based on social model of disability which recognises, that disability is not an illness (and in the developed countries it was recognised and accepted), and disabled people do not need pity and constant
guardianship, but need possibilities to study, work and communicate to become useful members of society”.

As a result of project activities it is planned to reach out about one and a half thousand parents of disabled children, and these children can participate in joint social events together with other children. It is expected in the end of the project the rehabilitation and resource centres in cooperation with local communities and government agencies will become vital for work with disabled children and their parents, and that this experience can be replicated in other regions.

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Brief information about participants of the project
Partner organisations responsible for implementing the project:

HealthProm – a charitable non-commercial organisation, based in London, works since 1984 with local communities for improving health and social support for vulnerable women and children in the countries of the former Soviet Union (Azerbaijan, Kazakhstan, Russia, Uzbekistan, Ukraine, Tajikistan and recently in Kyrgyzstan). The primary activities of the organisation are social and medical projects. Recently HealthProm has successfully finished similar (to Kyrgyzstan) a 3-year project in Altay region of Russia. Local authorities immediately supported the initiative and provided premises and financing for two centres.

The Association of Parents of Disabled Children (ARDI), Bishkek, established in 1995, gives advisory support to parents of disabled children, and also aspires to realise capabilities of disabled children and youth by their development and integration into society.

Public Association Shoola Kol, Bokonbaevo v. in Issyk-Kul region, is the human rights organisation and engaged in educational activity and raise public awareness. Shoola Kol also advises and educates people with disabilities and helps them establish NGOs for advancement of interests and rights of disabled people.

People who are involved in the project:
* Tatyana Buynovskaya – HealthProm manager, as well as the project manager “Supporting young disabled children and their families in KR”, financed by the Big Lottery Fund.
* Jonathan Watkins – senior project expert, social worker, consultant.
* Mark Hunter – child disability consultant, paediatrician.
* Azat Israilov – in-country project manager in Kyrgyzstan.
* Tamara Dyikanbaeva – Association of Parents of Disabled Children chair, project officer in Bishkek.
* Antonina Lee – Shoola Kol chair, project coordinator in Issyk-Kul region, Bokonbaevo.

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HealthProm visit to Kyrgyzstan to start the project
Under the project funded by the Big Lottery Fund HealthProm delegation of three people (see list above) have visited Kyrgyzstan for meetings with the representatives of government agencies and international and local non-governmental organisations. Between 11 and 23d May, 33 meetings took place in Bishkek and Bokonbaevo, one of them was an interview to the newspaper “Vechernij Bishkek”. In addition HealthProm representatives visited homes of families with disabled children. The results of these meetings will help partners to define the area of specialization for new rehabilitation centres. These centres will work in close interaction with local authorities and government agencies. Currently through consultations with local authorities and additional meetings there is a search for premises for the future centres as one of overall
project objectives is sustainability of the centres.

Young people: new horizons!
The youth of the Association of Parents of Disabled Children is becoming more active in public life of the country, and has also achieved some successes in education. In June this year Seinep Dyikanbaeva, project and PR manager of ARDI, has been named one of the first New Heroes of Kyrgyzstan for the positive contribution to the development of our society, a nomination organised by NGO “Atool” (Karakol). More detailed information can be found at: http://www.atuul.kg/?pid=19&hid=3. In addition, recently Seinep, a first year student of the American University in the Central Asia, has passed through a rigid competitive selection for a year training in Japan, sponsored by the Japanese International Agency on Cooperation (JICA).

Ukei Muratalieva, another active young volunteer of ARDI, a student of the Kyrgyz Technical University, has been chosen together with other two Kyrgyz citizens for another training program on leadership and building networks, also sponsored by the Japanese International Agency on Cooperation (JICA). She leaves for a month for Tokyo to learn how to train and at the same time to learn how local disabled people live and the organisations of disabled people work. After returning home she will conduct a series of trainings and seminars.
Best wishes to them!

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President signed the Law “About the rights and guarantees for persons with disabilities”
President of the Kyrgyz Republic has signed the law “About the rights and guarantees for persons with disabilities”.

This law aims to improve social protection of persons with disabilities, provide them with equal with other citizens of the Kyrgyz Republic possibilities to practice their rights and freedoms, avoid restrictions in their lives.
Source: 24.kg, 12 April 2008

UN adopted the Convention on the rights of persons with disabilities
The General Assembly of the United Nations in the beginning of June, 2008 approved the Convention on the rights of persons with disabilities. It became the first universal international legal document aiming to protect the rights of persons with various kinds of permanent physical, mental, intellectual or sensor limitations. The convention contains 50 articles that protect and encourage the rights of the disabled, decrease discrimination towards them, provide them with rights to work, health services, education and full participation in society life, and also access to justice, inviolability of person, freedom from exploitation and abuse, and freedom of movement.
Source: 24.kg, 16 June 2008

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The new law about social order accepted
The law accepted in the second reading on 5th June this year intends to involve non-commercial organisations in realisation of government social programs through placing on a competitive basis and implementation the government social orders. This will also allow the government to essentially increase the efficiency of implementation of social programs and to involve in social sphere additional human, material and financial resources from non-government sources and it will partially reduce dependence of the non-governmental organisations on foreign funding.

The Minister of labour and social development of the Kyrgyz Republic Uktomkhan Abdullaeva supporting the law, underlined that “now in Kyrgyzstan, some social establishments, children’s homes, boarding schools, houses for aged people opened by the donor funding and the international organisations are on the verge of closing because of the termination of their financing by the foreign organisations. So why can’t we support the efforts of non-governmental organisations and public associations which will render social services to the
population and care for certain number of the aged, homeless children or the disabled who cannot be accommodated in the formal establishments now since there are no places or shortage of funds?”.

Similar laws has been successfully working for a long time in the countries of Europe, in Kazakhstan and 6 federal areas of Russia. Source:
Source: “The third sector” 16 (42), June 2008

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Japanese agency for international cooperation plans to open a centre for people with disabilities
“The Japanese agency for international cooperation (JICA) plans to open in Kyrgyzstan a centre for people with disabilities”, – informed today at a press conference Uktomkhan Abdullaeva, the Minister of labour and social development of KR. According to her, there is the Asian-Pacific centre on problems of the disabled located in Japan. It is going to expand its activities in Central Asia. “After a working visit by Kyrgyz delegation to Japan it decided to open a head office in Kyrgyzstan for the countries of CA. It will bring to the republic additional investments. After the discussion of details of opening of the centre in October 2008 an international conference will take place in which well-known people with disabilities will take part”, – says Uktomkhan Abdullaeva.

As Minister of labour and social development KP emphasizes, such decision was affected by the new law “About the rights and guarantees of people with disabilities” recently passed by the government. “We have excluded articles from it that this category of people cannot work. Their number in workforce should make not less than 5 percent”, – said Uktomhan Abdullaeva.
Source: 24.kg, 22.05.08

Projects on employment for disabled people
We have to break the stereotype that disabled people are defective, said Edward Vinter, the executive director of Eurasia Foundation in Central Asia (EFCA). According to his words, disabled people in Kyrgyzstan are especially vulnerable group of population as being full members of society they simply cannot get a job. Many businessmen, in his opinion, are just confident that the disabled cannot work properly. In this regard, there are now some projects in Kyrgyzstan aiming to render assistance to disabled people in work search. In particular, the Eurasia Foundation in CA together with the Republican independent association of disabled women has
started cooperation with businesses of Bishkek and their management in granting workplaces for disabled people. There will also be a vacancy fair in Bishkek for people with disabilities.

Besides that, today the World Bank and EFCA declared winners of the Program of small grants of 2008 in Kyrgyzstan. “It is intended for the local organisations of a civil society. For 1996-2007 we have given out 121 small grants for a total sum of $315 thousand”, – said the chief executive of Fund Eurasia in the Central Asia Edward Vinter. Thirteen organisations have become winners.
Source: 24.kg

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The Japanese fund of reduction of poverty is intended to support disabled children
The Minister of Education and Science Ishenkul Boldzhurova presented a law providing such a grant recently at a committee meeting on international affairs and inter-parliamentary communications of the parliament of KR. She said, that in 2005 the ministry of education and science requested the Asian Development Bank (ADB) to support children with disabilities. “This project is supported by the Japanese Fund on reduction of poverty which will allocate $1 million, $50 thousands are provided by our government”, – added Ishenkul Boldzhurova.

The minister informed, that in the republic there are now about 19 thousand disabled children of which 250 children study at comprehensive schools in KR, in addition three thousand children study at the special boarding schools.

Ishenkul Boldzhurova noted that grant money will go on preparation of methodical manuals for schools and future teachers for training children with disabilities. According to her, for implementing the future project 35 comprehensive schools all over the country have already been selected – 5 in each region of the country, and also four boarding schools (internats) and two kindergartens.
Source: 24.kg, 15.04.2008

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Children on holiday in Issyk Kul
Thanks to allocated 50 holiday vouchers by the Kyrgyzstan Federation of Trade unions the Association of Parents of Disabled Children organised on 4 – 25 July holiday for members of the Association, including 50 children ith special needs. Children’s recreational centre “Ulan” located near Balykchy accommodated them, and under the HealthProm project “Supporting young disabled children and their families in KR” funded by the Big Lottery Fund transportation expenses for all children have been covered.

The recreational centre can accommodate about 250 people. Besides swimming on lake, there were joint cultural events organised for children, which promoted integration of disabled children with other children, and also promoted tolerance among their peers.

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Grants
Canadian International Development Agency (CIDA) (Kyrgyzstan, Kazakhstan, Tajikistan) on behalf of the Canadian Foundation announces call for applications for small grants program for Central Asia.

The main areas: poverty reduction, sustainable development, increase participation of women, protection the children’s rights, capacity building for organisations, environment.

The maximum size of a grant is $20,000. The general grant pool is $50,000.

Projects should be short-term ending and presenting a financial report until 1st March 2009. For additional information please write to Anna Zhugan on: Anna. Zhugan@international.gc.ca

Bradley Foundation contests
Bradley Foundation supports: conducting annual events, holding conferences and seminars, purchasing equipment, general support, training, investments related to a project, publications, researches, stipends, development of educational programs.

Applications accepted: 1 March, 1 July, 1 September, 1 December each year.

The size of a grant: from $100 up to $550,000.

Priority areas of support: development of civic sense – projects can be aimed at any sphere of public life (economy, politics, culture, civil society), but they should advance citizenship to the bottom idea of elections and vote. For example, these can be projects showing increased public participation, political or academic research, media projects and others. Building projects and individuals are not financed.

Application procedure can be found at the Fund’s site. Results of selection appear in February, May-June, September and November, depending on application submission. More information can be found at: http://www.bradleyfdn.org/
Source: “the Third sector” 16 (42), June 2008

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This newsletter sent to We Can Do by Azat Israilov. People who wish to receive future issues of this newsletter, in PDF format, via email should inquire by email at aisrail@gmail.com (NOT with We Can Do)

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11th Duskin Leadership Training in Japan

Posted on 25 August 2008. Filed under: Announcements, Call for Nominations or Applications, Capacity Building and Leadership, Cross-Disability, East Asia Pacific Region, Education and Training Opportunities, Opportunities | Tags: , , , , , , , , , , |

The Duskin Leadership Training in Japan program is intended for persons with disabilities in Asian and Pacific regions who have potential to be community leaders. To help achieve their goals, this program provides an opportunity for them to learn about welfare measures, policies and services for persons with disabilities in Japan and thus improve their knowledge and skills. It is sponsored by the Duskin AINOWA Foundation as one of the projects commemorating the Asian and Pacific Decade of Disabled Persons (1993-2002)

A maximum of 10 (in principle, one trainee from one country/region) will be selected. Training period duration will be 10 months.

Here are applicant Qualifications:

(1) The applicant should be a person with disability who wishes to contribute to the community as a future leader.

(2) In principle, the applicant should be between 18 and 25 years of age.

(3) Specific educational background or work experiences are not required.

(4) The applicant should undergo ten-month continuous training in Japan and should be able to adapt himself/herself to the Japanese way of life.

(5) The applicant should have sufficient communication skills to participate in the Japanese language course given in Japanese or Japanese sign language or English or American sign language.

(6) The applicant should be able to carry on the activities of daily life without assistance.

(7) The applicant should have his/her own training plan.

(8) The applicant should have a surety, who is a parent, brother or sister who is of age, or someone who is equivalent to the kin.

(9) The applicant should be ready to accept all risks in case of unforeseen incidents including accidents.

Application deadline of the 11th program is November 14, Friday, 2008

For more information please visit: http://www.dinf.ne.jp/doc/english/duskin/index.html



Thank you to Ghulam Nabi Nizamani for circulating this notice. Readers who are interested in attending, or who wish to make inquiries, should please follow the web link to the official web site for the 11th Duskin Leadership Training program and inquire directly with the organizers, and NOT with We Can Do. Thank you.

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Workability International Conference 2008 in Sapporo, Japan

Posted on 21 July 2008. Filed under: Announcements, Cross-Disability, East Asia Pacific Region, Employment, Events and Conferences, Opportunities | Tags: , , , , , |

The Workability International Annual Conference will be held in Sapporo, Hokkaido, Japan, from September 9 to 11, 2008.

Hosted by Workability International Japan, this conference will discuss issues relating to the employment of people with disabilities and cooperated business possibilities in Asia region.

People interested in learning more about the conference, or who wish to download registration forms, should please follow the web link to the official conference website at:

http://www.selp.or.jp/wi2008/eng/index.html

Inquiries can also be directed to the following contact information, NOT to We Can Do.

Kaoru Araki araki@selp.or.jp and/or Tsuyumi Nakamura asia-wi@selp.or.jp
Workability International Japan/Asia
c/o NPO Japan SELP Center
1-13-1-2F Shinjuku, Shinjuku-ku, Tokyo 160-0022 JAPAN
tel: +81 3 3355 8877or +81 3 3355 8898(english available from July 2008)
fax: +81 3 3355 7666

We Can Do learned about this conference via the Adhoc_IDC email discussion group.

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RESOURCE: Disabled Women’s Organizations in Pacific-Asia

Posted on 7 April 2008. Filed under: Cross-Disability, East Asia Pacific Region, Resources, South Asian Region, Sub-Saharan Africa Region, Women | Tags: , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , |

The following list of Disabled Women’s Organizations, Groups, and Committees in the Asia/Pacific Region (plus a few in Africa) was developed at the International Labour Organisation in Bangkok in December 2007. We Can Do readers should note that contact information can change quickly. If you try contacting an organization and cannot seem to reach them with the contact information given here, try googling the name of the contact person, or the name of the organization, or both. You can also consult other resources that can help you find more disability-oriented organizations around the world.

List of Disabled Women’ Organizations/Groups/Committee
Date: 19-12-2007

Annie Parkinson
President of Women with Disabilities Australia (WWDA)
Post Office Box 605 Rosny Park, Tasmania 7018 Australia
Tel: + 61 3 62448288
Fax: + 61 3 62448255
E-mail: wwda@wwda.org.au
Web: http://www.wwda.org.au

Sabina Hossain Kochi
Chair Person of
Women with Disabilities Development Foundation BPKS complex, Dhakkhinkhan, Uttara, Dhaka 1230. Bangladesh
Tel: + 880-8923915,8960077
E-mail: bpks@citechco.net

Ashrafun Nahar Misti
Deputy coordinator of Women with Disabilities Development Network
BPKS complex, Dhakkhinkhan, Uttara, Dhaka 1230, Bangladesh
Tel: +880-8923915,8960077
E-mail: cotoed@bpksbd.org
Champa Dash
Chairperson of
Disabled Women’ Development Committee
PSID center Narail
Moheshkhola Narail PSID Center
Post: Narail, Upzilla & dist: Narail, Dhaka, Bangladesh
Mob: +880-8901713196017

Shucithra Rani Shaha
Chairperson of Disabled Women ‘s Development Committee,
Nagarpur Disabled Peoples Organizations Tangail Bangladesh
Vill & Post : Mamud Nagar
Upazilla: Nagarpur, District: Tangail
Bangladesh
Mob: +880-01711`512295, 01712078249

Mah,uda Khatun
Chairperson of Disabled Women Committee Narshindi
Narshindi Disabled People Organization to Development
Vill: Ashrafpur (Near Sub registry Office )
Upazilla: Shibpur, District : Narshingdi
Bangladesh
Mob: +880-01712078247, 01713196024

Hafsa Akter
Chairperson of
Disabled Women Development Committee
Chandpur
Chandpur Disabled People Organizations to Development
Vill: Charbashanto, Upazilla: Faridgonj
District Chandpur, Bangladesh
Mob: +8801712o78245

Soyada Shahina
Disabled Women’s Development Committee
NDDS Protibandhi Kallayan Society (PKS)
24, R K Mission Road, Dhaka, Bangladesh
Mob:+880-01712069686
e-mail: pks-bd@agnionline.com

Naznin Nahar
Coordinator of
Disabled Women’s Development Committee, Meherpur
SPD Complex, Post: Mujibnagar
Dist: Meherpur-7100
Bangladesh
Tel:+880-2-07923-74011
Fax: +880-2-8332924
e-mail:spd@bdonline.com

Nasima khatun
Chairperson of Disabled Women’s Development Committee, Disabled People Organizations to Development Moulovibazar, Bangladesh
Vill: natissar, Post: Giash Nagar ,
Upazilla & Dist: Moulovibazar , Bangladesh
Mob: +880-01712078248

Lovely akter Shapla
Chairperson of Disabled Women’s Development Committee, Monmanshingh Disabled Peoples Organizations to Development
Vill: Voradoba Klab bazaar, Upazilla: Valuka
Dist: Moimanshingh, Bangladesh
Mob: +880-01713196029

Women with Disabilities Project Centre for Services and Information on Disability (CSID)
House # 715, Road # 10,
Baitul Aman Housing Society
Adabor
Dhaka- 1207 Bangladesh
Tel: 9129727, 8143882
Fax: 8125669
E-mail: csid@bdonline.com, csid@bdmail.net
Web: www.csidnetwork.org

Disabled Women’s Committee
Fiji Disabled People Association 355 Waimanu Road, Suva G.P.O. Box 15178, Suva, Fiji
Phone: +679- 331-1203
Fax: +679- 330-1161.

Association of Women with Disabilities Hong Kong
Room 11-12, G/F, Wang Cho House
Wang Tau Hom Estate Kowloon,
Hong Kong, China
Fax: +852-2337-1549
Email: women@awdhk_conf.org
For all disabilities.

Miss Berhane Daba
President of Ethiopian Women with Disabilities National Association (EWDNA)
P.o. Box 43128
Addis Ababa, Ethiopia
Tel: + 252-1-0911-451717
Email address berhanedaba@yahoo.com

Regina
Secretary of Sadhana Women with Disabilities Association Tamil Nadu
ADD India
Kallukadai Steet, Sathyamoorthy Nagar
Keeranur Pudukottai District
Tamil Nadu, India
Email: addindiatn@rediffmail.com
All disabilities

Kuhu Das,
Director of Association of Women with Disabilities 6/J, Surah 2nd Lane, Phoolbagan, Kolkata-700010, India
Tel: +91-64535802
Fax: +91-23639115
Mobile: +91-9830226718
E-mail: sawwd@vsnl.net

Shampa Sengupta
Representative of Women with Disability, Sruti Disability Rights Centre
Sruti disAbility Rights centre
5A R.K. Ghosal Road
Kolkata 700 042, India
Tel: +91- 9433174978

Sobhagya Goyal
Vice President of National Forum for Visually Impaired Women
All India Confederation of the Blind Ghasety Bazar Ajmer
Rajasthan, India
Tel. : +91- 0145-2621185
Mob. : +91 – 9414708018

Ms. Lidya Miranita
Indonesian Association of Women with Disabilities (HWPCI)
Jl. Cempaka Putih raya No. 1, Jakarta – Pusat
Jakarta – 10510 – Indonesia
Tel/Fax : +62-21-42879844
E-mail : ariani_0704@yahoo.com
website : www.hwpci.org

Indonesian Blind Women Union (PERTUNI)
Gedung Inkoppol, Gd II, lt. 2
Jl. Tambak No. 2, Jakarta – Pusat
Jakarta – 10320, Indonesia
Tel/fax : +62-21-31931704
email : pertuni_dpp@yahoo.co.id

Ms. Kimie Nagumo
President of DPI Women with Disabilities Network Japan
Japan
nagumo-kimie@mwe.biglobe.ne.jp

Kim, Mi Joo
Representative of Women with Disabilities Arts and Culture and Network
Seoul Women’s Plaza 3F NGO Center 345-1
Daebang-dong Dongjak-gu Seoul 156-808 Korea
Tel: +82-02-823-8360
Cell: 011-746-2196
Email: kim_mijoo@yahoo.com
Web: http://www.kkipan.com

Koo Gwi Hoi
Coordinator of Organizing Committee for the Global Summit of Women with Disabilities
Swon Bdg, IF, 877-13, Shinjeong5-dong, Yangcheon-gu,
Seoul, Korea
Tel: +82-2-2692-2293
Mobile: +82-19-285-5447
Email: koohj19@hanmail.net

Lee Ye-ja
Korean Differently Abled Women United Organization
Rm 811, Chritian Building
136-46 Yonci-dong, Chongno-Ku, Seoul
Korea (110-736)
Tel: +82-2-3675-9935
Email: kdawu@hanmail.com
leeyeja@shinburo.com
Web: http://www.kdawu.org

Catherine Mwayoga
Women’s Committee
United Disabled Persons of Kenya (UDPK) Waiyaki Way; P.O. box 13488; Nairobi, Kenya
Tel.: +254-2-443915
Fax: +254-2-446065,
E-mail: disability@wananchi.com

Ms. Daloonny Souvannavong
Director of Lao Disabled Women Development Center
Ban Dongphosy, Hatsayfong District Vientiane
PO Box 6751, Thadeua Rd, Hatsayfong District
Vientiane Capital, Lao
Tel : +21 812282
Fax : +21 812282
Email : ldwdc@laotel.com

Shusila Poudel
President of Nepal Disabled Women Society (NDWS)
Pulchowk, Lalitpur:3; PO Box 5445, Nepal
Tel: +997-1- 535770, 531324
Fax: +997-1- 535770, 535142
E-Mail: sushila@coho.wlink.np
ndws@coho.wlink.com.np

Indira Chapagain
President of Nepal Disabled Women Association (NDWA)
NPC 8973,00560
Kathmandu, Putalisadak, Nepal
Tel: +977-1-6635926
Email: ndwa_ndwa@hotmail.com
Nara Kumari Karki
President of National Association for Disabled Women-Nepal (NADW-Nepal)
P.O. Box 7268 Koteshwor
Kathmandu Nepal
Tel: +977-14496664
E-mail: nadw@hotmail.com

Shrijana Singh
President of Deaf Women Development Committee (DWDC)
P.O. Box 4601 Putalisadak Kathmandu
Tel: +977-1-415-568
Fax: +977-1-416-200 Deaf and hard of hearing

Ola Abu Alghaib
Stars Of Hope Center ‘Empowerment of women with Disabilities’ Palestine
Palestine-Mamalloh-Al Elsal-Bazar Commercial Center-4th Floor
Tel: +972-2-2972345
Mobile: +972-599-026260
Email: starofhope2007@gmail.com

Miss N.G. Kamalawathie,
President of Association of Women with Disabilities (AKASA)
Pahalagama Road , Kongollewa,
Talawa, Sri Lanka
Tel: +94 25 5670329
Fax : +94 25 2275022
Mobile :+94 773121062
E-mail : akasa7@sltnet.lk

Savina Nongebatu
Member of Disabled Women’s Committee Solomon
Disabled People Organization Solomon DPASI(DPO) Solomon
Tel: +677- 24863, 677- 36062
savina_nongebatu@yahoo.com.au
cbr@moh.gov.sb

Association of Blind Women Thailand 94/4 Moo 13 Sihaburanukit Road
Minburi, Bangkok, 10510, Thailand
Tel: +66-2-233-6079
Email: abwt@tab.or.th

Ms. Supattraporn Tanatikom
Disabled Peoples’ International Asia Pacific Regional Office
92 Phaholyothin 5 Road, Samsennai, Phayathai Bangkok 10400 THAILAND
Telephone numbers: (662) 271 2123
Fax : (662) 2712124
E-mail: sarahmaithai@gmail.com,
supattraporn@dpiap.org
Website: www.dpiap.org

Ms. Hellen Asamo
African Women with Disabilities
P.O. Box 8567, Kampala, Uganda
Tel.: +256-41-540179
Fax: +256-41-540178
E-Mail: nudipu@starcom.co.ug

Ms. Duong Thi Van
Women’s Committee of Bright Future Group for People with Disabilities
124 A Dai La Street, Hanoi, Vietnam
Tel: +844 628-0527
E-mail: van@netnam.com

Ms. Nguyen Hong Oanh
Director of Hanoi Women with Disabilities Club 112B5, 46B Pham Ngoc Thach alley, Hanoi (the front gate), Vietnam
Tel: +84-4-8522 778
Email: phunuthudo@nguoikhuyettat.org
lananhdf@gmail.com



Thank you to Bishnu Maya Dhungana for passing along this list.

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PAPER: Independent Living Movement in Developing Countries by Shoji Nakanishi

Posted on 30 December 2007. Filed under: Academic Papers and Research, Community Based Rehabilitation (CBR), Cross-Disability, East Asia Pacific Region, Guest Blogger, Latin America & Caribbean | Tags: , , , , , , , , , , , , , , , , , , , , , , , |

URL for this page: http://tinyurl.com/2eeldt

Independent Living Movement in Developing Countries

by Shoji Nakanishi
Disabled People International (DPI) Japan

It has been many years since experts of rehabilitation recommended training and educations to people with disabilities to enable them to get jobs as non disabled people do. The experts believe that independence means only economical independence. As a result, parents think it impossible for their disabled children to live independently in their communities. Parents tend to put these children into a residential institution for them to live permanently. Following these ideas, the government is promoting to build more institutions and to train more experts for people with disabilities.

The Independent living movement by severely disabled people in America denied institutions that lead to isolation and discrimination. In 1972 The First IL center was established in Berkeley, the second one in Houston, in 1974 the third in Boston. A lot of IL centers have come into the world in a very short time. All disabled people in the whole country were united, and then won the amendment of rehabilitation law in 1978. As a result, IL centers got great opportunities to get subsidies from the federal government. “Independent Living: From Social Movement to Analytic Paradigm”, An academic paper written by Gerben DeJong, published in 1978, drastically changed the way of thinking toward disabilities, from rehabilitation to independent living. With this paper, the philosophy of independent living was accepted as a social movement on a academic basis. These two events rapidly promoted the establishment of IL centers nationwide.

Independent Living Movement In Developed countries

The IL movement, which gave dreams and wishes to disabled persons, has grown to service provision systems by disabled peoples themselves and advocacy activities by IL centers in these 30 years in all developed countries, except the Oceania region.

Ed Roberts, the founder of the Center for Independent Living in Berkeley and other activists with disabilities said, “People with disabilities should live in communities.” “People with disabilities are neither patients to be cared for, children to be protected, nor Gods to be worshipped.” “People with disabilities themselves can identify their necessary assistance and manage it.” “People with disabilities are the victims of social prejudice rather than victims of disabilities.” This philosophy was soon accepted in many parts of the world. On the grounds of this philosophy, IL centers are providing these services below:

  1. Dispatch of Personal Assistants.
    • There are two ways of dispatching personal assistants; one is the way of direct dispatching like in Japan, another in the way of introducing through IL centers like in the U.S.
  2. Peer Counselling
    • Counselling, talking or sessions among peers who have the same or similar experiences of disabilities.
  3. Independent Living Skill Training
  4. Advocacy Activities
  5. Providing information
    • Housing and social welfare referral are included.

Now the organizations of IL centers are established in each country and region, such as NCIL in America, CAILC in Canada, JIL in Japan, and ENIL in Europe. In 1999 The first summit of World independent Living was held in Washington D.C, U.S.A . Since then, three summits have taken place in different areas where a great number of disabled leaders, including leaders from developing countries became involved.

Conditions concerning Independent Living in developing countries

The Idea of independent living, which insists on self-decision and self-management, also fascinated people with disabilities in developing countries. But because of lack of social resources, it is thought to be difficult in developing countries to achieve environments where there are enough services and accessibilities. Moreover, quite a few people thought by mistake that independence means only economical independence, so that they believed that nobody can live an independent life except for a lightly disabled person. It is nearly impossible for people with disabilities to get jobs in Asia, where only 5 or 10 percent of disabled children can have school education.

As a result, almost all developing countries tried to get disabled people to be independent through CBR (Community based rehabilitation) produced by experts, in the same period of the IL movement. Services based on institutions could be only beneficial for disabled people living in urban areas. The main target of CBR is for disabled people who live in rural areas, occupying 7 or8 percent of the total population. Non-disabled people in their communities were voluntaries trained as CBR workers, and then they did some simple rehabilitation work and help the daily lives for disabled people. Indeed, the quality of life for disabled persons might get improved to some extent, through basic physical training, walking training, sign language education, inclusion by CBR workers, and financial aids of private companies like Micro Credit. But CBR did not necessarily bring independent living for disabled persons though disabled persons had joined as official members since the beginning of providing services. That is because CBR was firstly positioned as extentions of institutions, so that disabled persons were kept under control or management of experts without disabilities.

It is often the case that disabled people who have loved the idea of IL also name their activities IL in some developing countries. For example, a certain disability organization In Mexico established a new organization named “International Organization of Independent Living for People With Disabilities”, arranging the curriculum for disabled people which included lessons about fitness, physiology, swimming, manipulation of wheelchair, driving of remodeled cars, sexuality and family life, urology, training of daily living activities etc. In Thailand, one of the staff with disabilities working at Sirindorn National Medical Rehabilitation Center suggested the Independent Living Unit, providing much the same program as Mexico’s organization did. Even though these trials may not always share the same meaning of original independent living, it indicates that there are also many disabled people having a try at independent living by themselves, in developing countries.

Scheme for spreading IL in developing countries

In 1980, American disabled people who had got involved in the IL movement began to act in other countries to spread the philosophy abroad. Nowadays, Japan is taking charge of propagation of IL in the Asian region, while in America, IL centers or other organizations like Mobility International are inviting other countries’ disabled leaders to their training seminars.

One of 4 activities is often adopted as a way of spreading the IL philosophy in developing countries; first is promoting theoretical framework of IL, second, advocacy, third, participation of severely disabled persons in self-help organizations, and the last, showing a role model as an example of IL.

1. Activity to promote the theoretical framework of IL
  Firstly it is necessary to correct the mistake about IL that independence means doing everything alone without any help. In spite of someone’s help, it is regarded as IL, if only self-decision and self-management can be done. This idea welcomes people with disabilities as “very good news”. But, in most cases, this acceptance does not immediately bring grassroot activities. For instance, a lot of disabled people were excited to meet American activists who came to Japan for an IL promotion tour in 1982, but the IL movement in Japan did not start untill the first IL center was established in 1986. It is very important to follow up on their experiences.

The first IL seminar in Asia was held in Bacolod, the Philippines in 1994, mainly promoted by STIL, Sweden and the Human Care Association, Japan. Three Asian persons with quadriplegia joined this seminar. After the seminar, Motab from Bangladesh tried to expand his job at the Center for the Rehabilitation of the Paralyzed to the activity of independent living but in vain because of his death 3 years ago. Male participants from the Philippines, all of whom had already married, got quite interested in the IL movement, but they found it difficult to make a movement in their own country, because they had to prepare for their family before they join the movement. On the other hand, Topong from Thailand, on the grounds of the ideals of the IL movement, held a demonstration for better access of Sky Train, and educated other organizations in local areas. The Human Care Association supported his activities, and then offered him to come to Japan for training

Famous disabled activists participated in the 1999’s seminar in Malaysia held by the Asia Disability Institute. One of them was Christine Lee, who had staged a demonstration for access of the mono railway at the risk of being arrested. All participants were wildly enthusiastic on the last day of the seminar, and promised each other to promote the IL movement more actively from now on. But actually, few of them were able to increase their activities in the IL movement. There may be two reasons. One is most of the participants have their own jobs and have no time for the IL movement; the other is that severely disabled persons who really need IL have not joined the movement yet.

Promoting activities are very essential to support and spread the IL movement

2. Advocacy
   The IL movement in Brazil was based on advocacy. Rosangela Berman Bieler, a Brazilian woman with quadriplegic who happened to visit an IL center in America was so impressed with its philosophy that she joined the IL movement. In 1988 CVIRJ, the first IL center in Brazil, was establish by her in Rio de Janeiro. CVIRJ began to start a movement for easy access to the city, such as getting rid of steps on side walks. The problem of accessibility is very meanful not only because it is a problem that applies to all kinds of disabled people, but also because it will bring visible outcomes as advocacy. The IL center in Brazil made the movement more powerful by keeping contact with IL centers in America. Now in Brazil, there are 25 IL centers established, and the national union of IL centers has been united.

In South Korea, the IL movement has made rapid progress in a short time, because the Korean people getting involved with the IL movement have already created activities of advocacy on a large scale. Chon Manfu, a severely disabled person who applied for the role model of IL in 2000, was empowered through the experiences of joining big demonstration in 2001 and a long-term hunger strike in May 2002, triggered by the death of a wheelchair user at a subway station. These events were arranged by Pack Gyoung Souk, the principal of a night school for the disabled people. A lot of his students, who have studied IL, are taking part in the IL movement, which is one of the reasons why the Korean IL movement has such power. Now, the main issue in Korea is to train disabled people as peer counselors. The physical and mental conditions for developing IL in Korea are being prepared; 3 IL centers in Japan, Human Care Association, CIL Tachikawa, and HANDS Setagaya, collaborated with each other to establish a new project team that dispatches peer counselors to Korea several times a year and provides long-term training in Japan for Korean disabled leaders. As a result, some of them have reached the high standard of peer counselors that JIL is setting. There are 5 IL centers in Korea.

3. Participation of severely disabled persons in self-help groups

In Thailand, many disabled people used to sell lottery as a job, which made enough money to prepare for their own family. But because of this job, the disability movement did not grow among people with disabilities in Thailand. Under these circumstances, Topong, as I said before, thought it was only the IL movement that would change the environment of disabled people in Thailand. He tried to promote the IL movement in collaboration with 3 organizations of disabled people, Nontabri,Chonbri,Nakonpatom, three of which were very conscious about the rights of people with disabilities. To support his activities, the Human Care Association invited him to come to Japan for an IL seminar.

Each of these three organizations were democratic self-help groups, which provided home visiting services for disabled persons. Leaders of these organizations were willing to accept the idea of IL. The first step of a three year project is to open a seminar by Japanese disabled leaders, ten participants from three organizations were all studying hard, but none of them were severely disabled. So, the project team gave a task for them that they should find at least five severely disabled persons and take them outside their homes until the next years’ seminar was held.

After this, three organizations began to train students to be a voluntary staff, and ask them to take severely disabled persons outside. Some of disabled persons went outside for the first time in their lives; some of them were strogly opposed by their families, so that they were forced to refuse staff visits; some of them gave up to go outside because of their bad health; some of them had lifters fixed in their bathroom by staff who saw families lift the disabled person with great difficulty. As a result, many of them attended the peer counselling workshop held in 2002 empowered physically and mentally. As they are finished learning skills of managing an IL center in 2003-2004 year, the real activities are ready to start.

4. Showing role model of IL

Young disabled persons who belongs to the MileStone Society in Pakistan came to Japan for the Duskin Training Program, including the 9 month IL seminar at several IL centers, such as Human Care Association and Main Stream Association. It is almost a year since they have gone back to Pakistan and begun to start the IL movement. They looked around Lahore to discover severely disabled persons confined in their homes, and persuade them to attend training workshops held at an office. They asked some promising participants to experience IL in a room in the corner of the office.

In the end, a young girl with muscular dystrophy made a decision to live independently. She learned various IL skills such as how to take proper care from others and how to tell personal assistants what she wanted her PA to do by actually living in a special room arranged in a corner of her house. In the day time, now she works as a member of the Life IL Center the renamed office, riding in a power wheel chair taken from Japan. It is very meaningful that she began to live independently for the first time in Pakistan, moreover in such an Islamic society, where women are likely to be conservative. After her independence, two male disabled persons, who have been encouraged by her, want and even practice now to live independently.

Spreading the correct philosophy of IL

It is true that more and more people have heard about IL, and especially in developing countries, where their expectation toward IL is getting bigger and bigger. Nevertheless, most of them have given up their dreams, making excuses like these: “We have no resources to use in our country.” “Prejudices against disabled people are still deeply rooted.” “Government does not still prepare sufficient welfare systems.”

  One of the strategies to achieve the targets of the Biwako Millennium Framework for Action is “Strengthened community-based approaches for the prevention of causes of disability, rehabilitation and empowerment of persons with disabilities.” It says that “Many developing countries in the region are now beginning to augment and replace traditional institutional and centralized rehabilitation programmes and projects with approaches better suited to their social and economic environments of poverty, high unemployment and limited resources for social services. Community-based rehabilitation programmes form the hub of such strategies. The community-based approach is particularly appropriate for the prevention of causes of disability, early identification and intervention of children with disabilities, reaching out to persons with disabilities in rural areas, raising awareness and advocacy for the inclusion of persons with disabilities in all activities in the community, including social, cultural and religious activities. Education, training and employment needs could also be met by this approach. It is essential that persons with disabilities exercise choice and control over initiatives for community-based rehabilitation..” It even recommends in Strategy 10 that “Governments, in collaboration with organizations of persons with disabilities and civil society organizations, should immediately develop national policies, if that has not yet been done, to promote community-based approaches for the prevention of causes of disability, for rehabilitation and for the empowerment of persons with disabilities. Community based rehabilitation (CBR) perspectives should reflect a human rights approach and be modeled on the independent living concept, which includes peer counselling.”

Many people tend to think it nearly impossible to introduce IL to their countries. Naturally the idea of IL can apply to all disabled people in all countries by all ages. The problem is whether you can have the courage of doing what you have not done yet, and whether you have many peers and friends who will support your activity. Pioneers have a lot of difficulties, but have a great impact on other people. Nowadays a variety of IL programs and seminars are prepared for such people. People in developed countries including US are ready to assist you to be a leader of IL movement. We are showing the achievements and good news of IL at all times.



Thank you to author Shoji Nakanishi for granting permission to publish this article at We Can Do. Shoji Nakanishi is currently Chairperson of DPI Asia Pacific and Treasurer DPI World Council. He founded the Japan Council on Independent Living Centers.

I first learned about this paper when Ghulam Nabi Nazimani passed it along.

Have you written an article that you think would be appropriate for publication at We Can Do? Please review the We Can Do Wish List for Written Materials and Resources and contact me. You may either leave a comment somewhere at this blog or sent me an email to ashettle [at] patriot.net.

To find more academic papers or research related to people with disabilities in developing countries, click on Academic Papers and Research under “Categories” in the right-hand navigation bar.



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