3rd Latin American/Caribbean (LAC) Technical Meeting on STD, HIV-AIDS & Disability
August 1st and 2nd, 2008
City of Mexico
Organized by the Inter-American Institute on Disability and Inclusive Development (IIDI) and the World Bank With support from the National Council to Prevent Discrimination (CONAPRED, Mexico), the Central American Social Integration System (SISCA), the National Program of STI and AIDS (Brazil) and the Pan American Health Organization
XVII International Conference on AIDS (Mexico August 3rd to 8th 2008)
People with disability have often been and remained excluded from HIV prevention as well as AIDS care efforts as a result of an aggregation of various taboos and coordination miss opportunities. On one hand, it is often presumed that people with disability are not sexually active and at no risk of infection. Simultaneously, the fact that they have less access to education and social opportunities prevents them from being in touch with preventive information and resources. On the other hand, the organizations of people with disability are generally unknown and themselves unaware of the health and prevention policy making and programming opportunities.
The result of all this is that the exposure of men and women with disabilities to the main risk factors of HIV-AIDS are higher compared to non-disabled population. At the same time, while people living with AIDS have a higher survival rate due to medical advances, a frequent consequence is that there are an increasing number of disabilities (mainly physical and sensorial limitations) secondary to the disease itself or its pharmacologic treatment, indicating emerging needs and services to respond and coordinate.
Over the past two years, sponsored by the World Bank, the Inter-American Institute on Disability and Inclusive Development (IIDI), in collaboration with several international organizations working in the HIV-AIDS and Disability areas has organized two Technical Meetings (Chile 2006 and Argentina 2007) on STDs, HIV-AIDS and Disability. The main purpose of these meetings has been to facilitate knowledge shearing amongst specialists and encourage policy development to address the increasing interrelation amongst AIDS and Disability.
The main axes of this work have been on
a. Documenting the interface between aids and disability and compiling evidence of emerging needs and responses
b. Identifying opportunities for active collaboration between organizations working in the AIDS and the inclusion fields, to optimise use of existing resources and promote inter-institutional approaches to inclusive aids prevention and rehabilitation services delivery to people living with AIDS.
In 2008, with the support of CONAPRED (in Spanish Consejo Nacional para Prevenir la Discriminación, México), the World Bank and PAHO-WHO the 3rd Technical Meeting will be held in Mexico, on August 1-2, to coincide with the AIDS International Conference (August 3-8, 2008). It will continue working on recommendations for crosscutting and inclusive approaches HIV-AIDS Prevention and Care.
The 3rd Experts Meeting on STDs, HIV-AIDS and Disability, seeks to advance the discussion on “Evidence-based Research on the inter connections between AIDS and Disability” and on “Care for people living with AIDS and Disabilities: effective approaches and services”.
The expected outcomes of the meeting are:
o Review of new developments in LAC National AIDS Programs;
o Update bibliographical and research review on the topic;
o Review of new materials and initiatives of international agencies, Civil Society and Academia;
o Review of new content and tools for the LAC HIV-AIDS site on the issue;
o Development of a new set of recommendations for a cross-cutting and inclusive approaches in the area of STD, HIV-AIDS Prevention and Care, with special focus in “Monitoring & Evaluation and Evidence-based Research and on Care Attention for people living with AIDS and Disabilities, as a consequence of the treatment;
o Establishment of a LAC Permanent Working Group, with interagency involvement, south-to-south knowledge sharing and a joint research and implementation agenda;
Participants: Program Managers, Researchers, Practitioner and AIDS and Disability specialists from Latin American and the Caribbean
Venue: National Council to Prevent Discrimination (CONAPRED, Mexico), Dante 14 – 8o piso, Colonia Anzures, Ciudad de México
Friday August 1st
09.30 Challenges on AIDS Prevention and Care and Disability
10. 00 Conclusions from the 1st Brazilian and Central American Forums on AIDS and Disability – Discussion
11.30 Services for people living with HIV AIDS and Disabilities
14.00 Working groups
Saturday August 2nd
09.00 AIDS and Disability: from taboo to collaboration
09.30 Implementation experiences / Questions and answers
11.00 Emerging topics
o Services development (diagnosis, care, prevention)
o Research and evidences: people living with aids and disabilities secondary to the disease itself or its pharmacological treatment
o Vulnerability of PWD to STI and AIDS
12.30 Lunch and meeting with Ministries of Health and Education*
14.00 Approaches and future strategies
o Monitoring and Evaluation
o Regional Collaboration
16.00 Plenary – Strategic collaboration
* To be confirmed
Other related activities in Mexico
o “Satellite Session on AIDS and Disability”, organized by Disabled People International (DPI). August 5th 7:00 to 8.30 am (in English)
o “AIDS and Disability: a relationship to be taken into account”, organized by the Inter American Institute on Disability and Inclusive Development (IIDI) August 5th 6:30 to 8:30pm (in Spanish)
o “AIDS and Disability: a relationship to be taken into account”, Poster session, (daily, August 3-8) between 12:00-14:00h
Unfortunately, we have not resources to cover flight or other expenses for participants. We hope that participants can gather support from their organizations to travel to Mexico. Please confirm ASAP your willingness to participate. Your participation is extremely important to us and to ensure the inclusion of disability issues amongst the STD and HIV-AIDS agenda in the Latin American and Caribbean Region.
We Can Do received this announcement via the Global Partnership for Disability and Development (GPDD) email discussion group.
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Graduate student Nalini Asha Reyes at San Diego State University in California, USA, is conducting a survey about HIV/AIDS among people with disability in Jamaica. Her survey is based on an earlier, similar global survey by researcher Dr. Nora Groce at Yale University.
Nalini Asha Reyes is looking for people to participate in her survey. She is particularly looking for people in or from Jamaica but will also welcome survey results from elsewhere in the Caribbean. If interested in participating, please read her letter below then contact her at firstname.lastname@example.org to request a copy of the survey. She can send it to you in Word document or PDF format.
HIV/AIDS and Disability in Jamaica Survey
Today, little is known about HIV/AIDS among people with disability. We would like to know how the epidemic is affecting individuals and groups with all types of disability in Jamaica and we ask you to help. We are interested in disabled people of all ages, and disabled people living with their families, on their, own, or in institutions.
We send this survey with the request that you fill it out on behalf of the organization or advocacy group you work with. (If you think someone else in your organization would know more about these questions, please give it to them to fill out). Your information has been provided either through the public website of the National Aids Committee of Jamaica, or by an Internet search using the words, “HIV/AIDS,” “Jamaica,” and “Disability.”
We are interested in hearing both from organizations that are working on HIV/AIDS issues and from organizations that are not currently involved in HIV/AIDS issues.
We will be looking for information about programs that provide HIV/AIDS education, interventions and services to disabled people and communities. We would also welcome stories from Disability advocates about attempts to get help for HIV/AIDS in one’s community, examples about not being able to get help for one’s community, stories about governments and HIV/AIDS voluntary organizations that have tried to reach disabled people and so forth.
You must be over the age of 18 to complete and return this survey.
This survey should require less than 30 minutes of your time, and can be saved and emailed back as a PDF or MS Word document. Please note that there are no ‘right’ or ‘wrong’ answers to any of these questions. Also, feel free to leave blank any questions for which you may not know the answer or which you may not feel comfortable answering. However, keep in mind we realize there is often little information available on this topic and so we are also interested in people’s ideas, impressions, knowledge, practices and attitudes. All information submitted will be kept completely confidential and will never be linked to your organization or team. Also, please note that we are not asking (and do not want) personal information or names of individuals who might have HIV/AIDS – we feel it is very important that we do not invade anyone’s privacy.
If you already have information about HIV/AIDS and Disability from your own organization or educational materials, information on training, studies, meetings, newspaper articles, or other materials relating to HIV/AIDS that you would like to share with us, we would appreciate it. If you know of a program or project that you think we should learn more about, please let us know. Finally, if you know of other Disability organizations, advocates, or government agencies who might have information about HIV/AIDS and Disability, we would appreciate it if you would forward this announcement on to them.
Language: If it is easier for you to write in a language other than English, please fill out the form in whatever language is easiest for you.
Nalini Asha Reyes
Graduate Student and Special Education Teacher
San Diego State University, 5500 Campanile Drive
San Diego, CA 92182-1170, USA
Phone: + 858.531.0847
John R. Johnson, Ph.D.
San Diego State University
College of Education; Department of Special Education
5500 Campanile Dr., San Diego, CA 92182-1170
Phone: +619.594.3841; Fax: +619.594.6628
Again, people interested in participating in the survey should send an email to Nalini Asha Reyes at email@example.com to request a copy of the survey.
Thank you to Nalini Asha Reyes for alerting me to this survey. I hope to be able to eventually post or link to the results of this survey.
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